2018: February 12-19

WEEKLY PROGRESSION/RELAPSE UPDATE & EVENTS:

  • (-): I thought about the individual(s) who made me feel suicidal one time this past week. I don’t remember why, but I am glad it was a very fleeting feeling and it didn’t bring me into the “dark place”. I am intrigued by the concept of how long it takes to shake hopelessness and how I am in a place where I genuinely feel like I can live outside of the trauma-loop.  I am amazed, but not surprised, how shameless and transformative the mind can be; where individuals can convince themselves they’ve not done something utterly horrible because no one will hold them accountable. For myself, I never want to be the person to cause someone else intentional harm, but I struggle with this concept sometimes, because at times (often emotional) pain and accountability are intertwined. I have faltered to act at times because I understand I live in a culture that is afraid of pain and therefore adverse to it. However, I also understand through over 1000 days of suffering, that to learn tolerance and to move beyond pain, one must face it. Not always head on, but it must be faced.
  • (+): My smell is improving. I’ve been using the same laundry detergent for several months and hair conditioner for maybe 8 months? I smelled my detergent (Target brand gentle & free) for the first time this past weekend, it smells good. My hair smells very strong too. I’m not sure if I like it. One of my friends back home from Wisconsin likes it, she told me one time (random). I’ll probably use it until the bottle is done and not repurchase (Hask conditioner, the one with the magenta top).
  • (+): I attended a discussion at the Gerontological Society of America (GSA) on the FDA’s proposal to broaden access to medications in nonprescription settings. It was interesting to hear the perspectives of other associations representing pharmacy, cardiology, sleep, allergy, asthma, and immunology, obstetrics and gynecology, and lawyers as well.
  • (+): I went to a patient advocacy training summit hosted by the National Health Council with stakeholders from various health divisions. I was able to meet some incredible individuals from the National Kidney Foundation, the Sjogren’s Syndrome Foundation, Arrhythmia Alliance, Maryland Citizens’ Health Initiative Maryland Faith Health Network, and many more. I look forward to writing a short story for a pharmacy magazine regarding this experience.
  • (+/-): My boyfriend visited me this past weekend. In this post, I will not explain how complicated it is to try and be in an intimate relationship with someone like me. That is a whole story in itself. But in general, I do not like to form too close of relationships to protect both myself and potentially the ones who may care for me. Haha, I am impressed though. He is doing a wonderful job coming along for the ride and overall I am very happy he came. He got to visit a bunch of my DC friends and we had a lot of good food and laughs.
  • (+): It was officially Lunar New Year on Friday! Made dumplings and hot pot with friends, played Chinese Ladder Game and participated in Chinese New Year events at the Kennedy Center. It was a lot of fun!
  • (+): I ate a lot of ramen…and other yummy Asian noodles.
  • (+): I’m cooking Asian food again! Went to H-Mart for the first time about a week and a half ago. My pantry has been updated with Asian sauces.
  • (+): I saw Black Panther. At first, I wasn’t sure if I liked it because I was dissatisfied with the ending (incomplete spoiler, I just wished there was something marginalized people could do themselves to get out of problems instead of relying so heavily on the goodwill of those who have more power and wealth, but I suppose that is how real-life works anyhow). However, I decided I do like it because the movie explored some complicated themes related to race and privilege. I believe in the United States there are still opportunities to make progress in these topic areas.

Did you see Black Panther? What were your thoughts? What did you do for Chinese New Year?

The Mind Reset

Go to the The Mind Reset to see my blog posts!

Instagram: @jingwunders

Here is my background:

Hello! My name is Jing and I am a severe traumatic brain injury (TBI) survivor who woke up in a neuro-ICU a little over four years ago. My accident was on July 3rd, 2013 and I don’t recall when I became conscious or left the hospital.

My baseline when I woke up was an inability to walk, smell, taste, feel emotion, hear very well, or even recall much of my past, including my accident. I gained headaches, tinnitus, migraines, and an identity as a chronically disabled individual.

I am an example of someone who fell through the cracks of our fragmented healthcare system in the US. Some reasons for this may have been due to insurance coverage issues, merging health systems, and non-collaborative care. Instead of going through the classic rehabilitation process that most TBI patients go through, I ended up following the path that was determined before my injury – heading to pharmacy school that fall.

Now four years later, I am a pharmacist finishing a few courses to complete my Masters in Public Health. I am currently the APhA Foundation Executive Resident performing a non-traditional pharmacy residency in association leadership and management.

I am choosing to share my life with you to:

  1. Document it – I have a memory disorder,
  2. Help bring awareness for traumatic brain injury survivors,
  3. Build a community for patients like myself – a lot of us are hidden, for valid reasons, but our quality of lives certainly can be heightened with support from others with and without TBIs.
  4. To provide tools and perspectives – I implement a lot of resiliency strategies to operate in the “abled” world despite having persistent disability…so at least outwardly for the most part I appear normal…
  5. To be liberated. There is something so freeing about just being able to be my authentic self.
    • Perhaps folks in the LGBTQ community can empathize in this sense, how unless an individual expresses their gender preference, it is not immediately apparent. How coming out of the closet – whether it is for gender or disability or anything else hidden, the fear of being stigmatized and rejected from normal society is real.

This does put me in a place of extreme vulnerability though and I’m trusting you to be kind. I encourage you to take this as an opportunity to self- reflect and use this as a litmus test for whether you are currently attuned to being compassionate. If not, I don’t think it hurts to start practicing now 🙂  And of course I am open to feedback, because I am continually learning.

Self-reflective questions:

  • If I find myself passing negative judgement, why am I doing this?
  • Is it necessary?
  • Does it contribute to the betterment of our society?
  • Whatever I am thinking, would I honestly be comfortable with someone else saying those things to me? About my mother, father, grandparent, sibling? To someone I really care about?

Last thoughts on vulnerability:

“It’s okay to be afraid, because you can’t be brave or courageous without fear.” – Dave Chappelle, Comedian

I hope you enjoy my blog and learning alongside me!

Please never hesitate to reach out at jingwunders@gmail.com 🙂